The Team
Core members of the DAND organization.
Catherine Kahn
Adam Kinney
Lehyla Calero
Science Advisory Board
The doctors, medical staff, and researchers professionals who comprise our board.
Dr. Phil Jensik (PhD)
Dr. Jennifer Bain (MD, PhD)
Want to Get Involved?
Get Started Today
Be it through organizing, financial contributions, or ideas for research contracts, there’s no better time to lend your support. Awareness is everything when it comes to ultra rare genetic disorders. A little help can go a long way.